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Project Alive
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Добавлен 29 май 2015
Project Alive is a 501(c)(3) nonprofit foundation dedicated to curing Hunter Syndrome. Hunter Syndrome or MPS II is a rare genetic disease that causes progressive neurological and physical impairment with an average life span of 12-15 years old.
Project Alive 2019 Update
Find out what Project Alive has accomplished this year thanks to YOUR continued support! We're looking forward to even bigger things in 2020!
Просмотров: 208
Видео
Ep. 5 - "This Is Jack"
Просмотров 1,4 тыс.6 лет назад
Donate: projectalive.org Videos Produced by Caravan wearecaravan.tv
Press: The Doctor's "Family’s Fight with Hunter Syndrome"
Просмотров 3146 лет назад
To help fund the cure visit: gofundme.com/projectalive projectalive.org Parents Chris and Melissa and The Doctors are joined by Hunter Syndrome expert Dr. Patricia Dickson to talk about this rare condition. And their son Case joins the stage to receive some very special messages from his favorite NBA stars. About The Doctors: The Doctors is an Emmy award-winning daytime talk show hosted by ER p...
Press: The Doctor's "What is Hunter Syndrome"
Просмотров 5436 лет назад
To help fund the cure visit: gofundme.com/projectalive projectalive.org Parents Chris and Melissa and The Doctors are joined by Hunter Syndrome expert Dr. Patricia Dickson to talk about this rare condition. And their son Case joins the stage to receive some very special messages from his favorite NBA stars. About The Doctors: The Doctors is an Emmy award-winning daytime talk show hosted by ER p...
Ep. 4 - Just Like You
Просмотров 3,2 тыс.6 лет назад
Donate at ProjectAlive.org Videos produced by Caravan. wearecaravan.tv #projectalive
Ep. 3 - Finn
Просмотров 6 тыс.7 лет назад
Donate at ProjectAlive.org Videos produced by Caravan. wearecaravan.tv Directed by Christian Schultz. #projectalive
Ep. 2 - Noah
Просмотров 1,4 тыс.7 лет назад
Noah’s vibrant personality and infectious laugh brings joy everywhere he goes. His parents, Krystal and Aywon, are soaking up every moment with him before the effects of Hunter Syndrome slowly take parts of him. No parent should have to walk this journey, but they bravely embrace each moment and fight to fund a cure that is within reach. Be a part of funding the cure. Support #ProjectAlive Dona...
Ep.1 - To Choose A Path
Просмотров 4,3 тыс.7 лет назад
projectalive.org Video produced by Caravan: wearecaravan.tv
Alive Trailer (Documentary Series)
Просмотров 3,1 тыс.7 лет назад
For more information, visit: projectalive.org Videos produced by Caravan: wearecaravan.tv
Gene Therapy for Hunter Syndrome
Просмотров 2,9 тыс.7 лет назад
For more information, visit: projectalive.org Video Produced by Caravan: wearecaravan.tv
What Is Hunter Syndrome?
Просмотров 24 тыс.7 лет назад
For more information, visit: projectalive.org Video Produced by Caravan: wearecaravan.tv
"Alive" Lyric Video - by Melissa Hogan/Mark Irwin
Просмотров 14 тыс.8 лет назад
"Alive" Lyric Video - by Melissa Hogan/Mark Irwin
I want a cure for Christmas... #CarolsForCures
Просмотров 2138 лет назад
I want a cure for Christmas... #CarolsForCures
Celebs answer the question, "What did you want to be as a child when you grew up?"
Просмотров 1,7 тыс.8 лет назад
Celebs answer the question, "What did you want to be as a child when you grew up?"
Actor Alexander Skarsgård | Project Alive
Просмотров 6 тыс.8 лет назад
Actor Alexander Skarsgård | Project Alive
Oscar-Winning Actor Jared Leto | Project Alive
Просмотров 28 тыс.9 лет назад
Oscar-Winning Actor Jared Leto | Project Alive
ESPN's Papi & Dan Le Batard | Project Alive
Просмотров 3,8 тыс.9 лет назад
ESPN's Papi & Dan Le Batard | Project Alive
Musician "Big Head" Todd Mohr | Project Alive
Просмотров 4959 лет назад
Musician "Big Head" Todd Mohr | Project Alive
Singer/Songwriter Matthew Moon | Project Alive
Просмотров 2279 лет назад
Singer/Songwriter Matthew Moon | Project Alive
Nutrition Specialist Alexa Iwan | Project Alive
Просмотров 1979 лет назад
Nutrition Specialist Alexa Iwan | Project Alive
Radio Host & Author Dave Ramsey | Project Alive
Просмотров 7919 лет назад
Radio Host & Author Dave Ramsey | Project Alive
Sports Agent Lex McMahon | Project Alive
Просмотров 909 лет назад
Sports Agent Lex McMahon | Project Alive
National Speaker & Author Chris Hogan | Project Alive
Просмотров 1,6 тыс.9 лет назад
National Speaker & Author Chris Hogan | Project Alive
NFL Coach Pete Carroll | Project Alive
Просмотров 6389 лет назад
NFL Coach Pete Carroll | Project Alive
Wealth Advisor David Adams | Project Alive
Просмотров 6489 лет назад
Wealth Advisor David Adams | Project Alive
Actor Jeffery Wilson | Project Alive
Просмотров 1,3 тыс.9 лет назад
Actor Jeffery Wilson | Project Alive
Movie Producer Jon Berg | Project Alive
Просмотров 1,2 тыс.9 лет назад
Movie Producer Jon Berg | Project Alive
So heartbreaking and so unfair!
I’m so sad to know about these neurological disorders that cause so much harm to kids& sadness & hardship to their families. I know some can & should be diagnosed at birth by a simple blood test. I don’t know if Hunter’s syndrome is one of them but certainly more needs to be done to address the deficiency of medical care for these kids. There are many politicians out there right now touting the sanctity of life. What are y’all doing about this??!! If you love a child’s life so much, Do Something!!
ابني عنده هذا المرض وعمره خمسه سنوات بس حتى مشي ما يمشي😥 هم اكو علاج الهم
اخي توفى مواليد ٩٤توفي ٢٠٠٢تقريبا رحمه الله تعالى
I love you, Jamie, Jason, and Jules! I think about all four of you often. You are in my prayers. Love, Emily Kronberg
My brother has it, so sad.
ابني حسوني من العراق هو احد أطفال hunter
اني هم ولدي اثنين بيهم متلازم هنتر 😭
@@user-uu9ve9gw9x ابني الله يرحمه كالو هانتر مره ومره هالار واتوفه بعمر ٩سنوات
@@user-mg4sq9oj1rنفس اخي تقريبا عنده هنتر توفى بعمر ٩
As Creator created his creatures in their own image, I can only speculate that All of the dis orders and dis eases Are created by the equivalent of the opposite of Creator
Thanks for that. Cheers
Hi Omar and Sebastian
We believe in you and we are doing everything we can to raise money for this. My Brody deserves a cure as all the Hunters kids do.
I tried to donate via text but it keeps telling me there's a sending error. I've seen the website but there's no other option. Has the number or word changed? Kudos to the families affected by Hunter's and massive respect to the doctors who are finding the cure. Good luck
Amber Shoffren You should be able to donate at projectalive.org/donate/. It doesn't work in some countries outside the US, but we are working on other options. Thank you for supporting our effort to save boys with Hunter Syndrome!
Project Alive I'm English so that might explain it
Sad how no money is spent on this for the small amount of kids who aren't apparently worth for trial
I also have an extremely rare dis order. All the medical field offers are pills that really don't do Anything to quell the symptoms. Less than a few million are *diagnosed (*2 people not knowing) so not much research.
Love and prayers going out to Jen, her family and all who need support <3
YES!!! SO POWERFUL! I can't wait.
Jon, Thank you for helping my friend Jamie's son Jack (pictured seated above) and the other children who suffer from Hunter Syndrome and bringing awareness to all of the diseases that fall under the #MPS umbrella. #WhenIGrowUp It is our dream to have this video go viral to spread the word of #hope for a #cure .
Amigo apollen a estos niños k necesitan vivir por favor salvemos vida puedes contribuir así se con un dolor aveces gastamos más en cosas k ni necesitamos agamos la diferencia salvando vidas de estos niños de antemano les agradesco
Thank you Dave Ramsey for promoting MPSII Hunter Syndrome awareness and to help fund the cure!